Marfan Awareness Month Social Media Campaign
Awareness of Marfan syndrome and related disorders leads to early diagnosis, treatment, and an extended lifespan. The most powerful way we can raise awareness is through you, our volunteers. Your circles of relatives, friends, co-workers, and neighbors, your knowledge, your personal journey, and your commitment cannot be matched by anyone outside of our community.
February is Marfan Awareness Month and you can do your part from the comfort of your own home with this Marfan Awareness Month Social Media project guide. In addition to sharing information from our Facebook page, Twitter feed, and YouTube Channel, you can create your own status updates, tweets, and posts to increase Marfan awareness. This guide walks you through steps to raise awareness among your online friends using social media.
P.S.: The Marfan issue is of great importance to me since my good friend Ashley suffered from Marfan Syndrome and died very early (aged 27) on November 1st, 2015. I still miss her.